Monday, June 15, 2009

Letter to the Doctors

Wanted to give you a brief update about my mother's condition. May I preface this summation with the fact I was in Washington, DC, most of last week, but upon my return my mother was feeling significantly worse.

She is sleeping 18 - 22 hours a day and can barely sit up from a prone position on the couch without assistance. She decided to stop taking the Ambien completely and had one good day last Wednesday where she walked to the corner with a nurse for a manicure and pedicure, but other than that, it has been a very rough 2 weeks. She has almost no hunger and some mild nausea occasionally in the morning. At times, she hears "crackling" in her left ear, but her hearing is bad and she really does not want to increase her steroid dosage either. I would like her to get a haring aid, but she refuses.

We both have concerns about the shaking of her hands and the weakness in her whole upper body. If she sits up and leans on one arm, the arm shakes and her hands now visibly shake most of the time.

We are seriously considering refusing this 3rd round of chemotherapy because her quality of life is basically non-existent. Hopefully, we can discuss some other options.

I am making a list of all the vitamins she is currently taking in order to be sure they are not counteracting with any of her medications. I also wanted to ask if we could decrease the Keppra to once at night instead of 500mg twice daily?

Sorry to be the bearer of "not so great" news on a Monday morning, but thought I'd just give you a basic idea about what's up before we saw you guys tomorrow.

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